Why I’m doing it
Sophia is living with PGAP1, an ultra-rare genetic condition that affects only a handful of children worldwide. Every day brings challenges that most families never have to face, but today, there is real hope.
Researchers at the Children's Medical Research Institute (CMRI) have identified a promising potential treatment and are now working towards the next critical stage of research. I'm fundraising to help accelerate this work and bring us one step closer to a therapy, not just for Sophia, but for every child living with PGAP1.
Every donation, big or small, will help fund this vital research. Thank you for giving Sophia and families like ours hope for the future.
