"We believe that with faith, courage and vision, tomorrow will be better than today"
Cystic Fibrosis - My husband and I had never heard of this illness, yet it's a genetic condition that my husband and I unknowingly passed onto our little boy.
At 15 months old our son Simon was diagnosed with Cystic Fibrosis. "Life expectancy is 37" is what the medical team told us. We were numb, our hearts were broken and at that point in time all we could think of was why this would be happening. What we did not realise at that point in time was when you think that almost all is lost, often a greater reward follows.
Cystic Fibrosis the invisible disease is not recognised by a scar, a bandage or a cut but its just as painful and scary. As parents it's our job to empower Simon and to use our voices to increase awareness, instill belief and give hope.
We are driven by a dream that one day, every person with Cystic Fibrosis will have the chance to live a long, healthy life. Thanks to supporters like you we will be able to fully fund a postdoctoral research position to find a way to use gene therapy to treat Cystic Fibrosis.
If you can give something small, even if it's just a prayer, it will make a lasting difference.
Much Love
Team Simon
God Bless you Simon and your beautiful family.