Finding a cure for CDKL5

Our Angel Annabelle

Why we're doing it

We are looking for your support in raising money to begin CDKL5 research at Children's Medical Research Institute with the hope of creating a gene therapy to treat this devastating disease.
 
CDKL5 deficiency disorder is characterised by seizures that begin in infancy, followed by significant delays in many aspects of development which prevent kids from being able to live their life to the fullest. Heartbreakingly, many children will not be able to walk, talk or socialise like others would.
 
Please help us work towards a gene therapy for CDKL5 to give life to the precious children affected, by donating today.

Thank you to our Sponsors

$12.63k

Previous Supporters 2020-2021

$705

Blackwell Public School

From everyone at Blackwell Public School. wishing you well. XO

$300

Anonymous

$261

Thierry Madelon

All the best for your research!

$212

Nido Early School - Willetton

From the Educators and Families of Nido Early School Willetton :)

$209

Anonymous

$209

Donna Cusbert

Team annabelle inspires me every day...I love you guys ...

$172

Nido Early School Treeby

$108

Nido Early School Willetton

From the Educators and Families at Nido Early School Willetton.

$104

Elline

$104

Aleksandar Talevski

$104

Donna

Nothing less than a cure is enough ❤️

$104

Tracey Stevenson

Nido Early School Duncraig family and staff raised $100 on Jeans for Genes day and we would like to donate this to Manna.

$104

Dimi

Never give up sweet girl xx

$104

Jennifer And Chris

You keep making mumma smile representing CDLK5 Go princess genetic warrior ❤

$101

Despina Learmonth

In support of the families and the little cherubs ❤️

$75

Nido Early School Beeliar Village

Our Service raised this money during Jeans for Genes day and after hearing Manna's inspiring story from Brit and Anthea at Nido Willetton, we wanted to donate the money to help Manna reach her goal to help children with CDKL-5.

$60

Nido Hocking

With Love from Nido Hocking

$52

Sylvia Oliver

For Annabelle 🩷

$52

Sailaja Kollati

Hi Manna's Mum be brave, everything will be alright. Don't loose your hope. God bless Manna dear.

$52

Kareen Cox

$52

Yuni Rinada

To Manna’s Mum & Family, be patient and never loose your hope. May God send the miracle to beautiful Manna 🙏🏻

$52

Andhika Raditya

$52

Elisha, Athalie, And Jon

Dear Manna and family, may God continue to bless and guide you in this journey!

$52

Jodie Woolgar

Annabelle’s story and journey is so touching and inspiring. How far she has come and the work you guys have been putting in is incredible. Team Annabelle <3

$52

Sylvia Oliver

Sending love & hope that one day, a cure can be found to help children like Annabelle xxx

$52

Aimee Terzis

You guys are so resilient & inspirational, keep going! Your two girls have a couple of amazing parents.

$52

Rema Leak

Love to all xx

$52

Tom Herring

$52

Leon Wright

God Bless

$52

Angie Abdo

$52

Oliver Sylvia

Supporting Team Annabelle & CDKL5

$52

Jen.

Hoping hoping hoping the day is a huge financial success 🙌 🙏

$50

Caris

$31

Hels

$28

Kerry Price

$26

Anonymous

$21

Anonymous

$20

Constance & Gun

$10

Bec Grafton