Why I’m fundraising for ADCY5 Familial Dyskinesia research
We are fundraising for ADCY5 Research at Children's Medical Research Institute.
Grace was born in December 2015, our precious pink bundle of joy. We first noticed something was not quite right when Grace caught a virus at four months of age. She seemed to get progressively floppy and was failing to thrive. By six months of age, she was unable to sit up or hold her head up. When she was eight months old our world was turned upside down when we saw our Paediatrician and he informed us that Grace had Global Developmental Delay and that he had some real concerns.
Within the week we were sent as an urgent case to a Neurologist and what followed was lots of blood tests, two MRI’s of her brain and a spinal tap, which still didn’t lead us to knowing what was wrong with our daughter. For us as her parents living with such uncertainty and not knowing how to best help her was devastating, we felt so helpless. It was and is still an emotional rollercoaster for us all.
In March 2018 we were referred to the Westmead Children’s Hospital rare diseases Neurology team and it was then we did genome sequencing on Grace as the doctors thought her disorder maybe genetic. In June 2018 when she was 3.5 years old after waiting over a year, we received Grace’s Diagnosis of ADCY5 Familial Dyskinesia. We were so relieved to finally have some answers and to find out our daughter had a normal life expectancy and intelligence; however, a diagnosis has not led us to a cure!! and we have limited therapeutic options to help improve Grace’s quality of life.
Our Amazing Grace inspires us every day as she lives with ADCY5 Familial Dyskinesia. A rare genetic movement disorder with a prevalence of less than 1 in a million so she is certainly a rare “gem”, her variation of her disorder is even rarer with only one other person known to be affected in the world. Despite her struggles with significant speech and gross motor delays she always has the biggest smile on her face and loves and enjoys life.
Her disorder causes her to have multiple episodes of abnormal movements throughout the day that are triggered when she gets sick, tired, anxious, stressed, or frustrated. It also causes muscle fatigue making walking extremely difficult. She uses a wheelchair to enable her to get around. She also has low muscle tone and is unable to stand up by herself, sit unaided and impacts significantly on her speech.
Grace is an amazingly determined little girl who never gives up. Her determination and love for life is infectious and inspiring.
As Grace’s disorder is rare it’s so important that we fundraise for research and development into helping children like Grace. Your generous donation will help CMRI to develop therapies for Grace and others living with ADCY5, meaning they can reach their fullest potential and make a real difference in helping them to overcome their daily challenges.
We are fundraising for the work of Adjunct Research Scientist, Associate Professor Wendy Gold, who is group leader of the Molecular Neurobiology Lab at Children’s Medical Research Institute. She conducts a program of research spanning the fields of neurology, neuropathology, fundamental neuroscience, clinical chemistry, and pharmacology. The money raised will go towards one researcher studying Grace’s condition to explore the possibility of developing a gene therapy, or other treatment, to halt the progression of her condition with the aim of improving her function.
Please help in supporting Grace’s journey and we know she will continue to AMAZE us.
Please help us make a difference by donating to her page today.
Thank you!
Thank you to my Sponsors
$2.5k
Cmv Group Staff Foundation
$150
Anonymous
$415
Lynne Cheney
All our best wishes from David & Lynne
$156.60
Kel
A ray of sunshine
$100
Anonymous
Well done Grace, you're an inspiration!
$52.20
Liz Quinn
May Grace continue to AMAZE and inspire us with her courage and love of life!
$52.20
Anonymous
$52.20
Madhu Fernando
Good luck to all of you!
$2.02k
Keder Solutions
$104.40
Anonymous
$15.66
Janet Anderson
$52.20
Anonymous
$20.88
Anonymous
$52.20
Mapex Services
$5.22
Anonymous
$28.19
Rebecca Kennedy
$104.40
Anonymous
$52.20
Jasmina Vernon
$52.20
Anonymous
$28.19
Daniel Brunt
$52.20
Anonymous
$52.20
Anonymous
$10.44
Anonymous
$52.20
Anonymous
$515
Nicole
I hope this helps even a little bit with your research.
$52.20
Paul Rady
One day you will get there. And when that day comes I’ll be so happy for you.
$104.40
Catherine
Love you darling girl.
$101.27
Anonymous
$20.88
Trent Heaft
$101.27
Anonymous
$52.20
Darren Guy
$62.64
Anonymous
All the best Grace
$52.20
Anonymous
$20.88
Silvia C.
$52.20
Zac Mcguane
Good Luck♥️♥️
$20.88
Rita Peroni
Keep dreaming Emma!
$20.88
Christine Walker
I hope this helps you little one. X
$10
Anonymous
$101.27
Benaren Constructions
$52.20
Anonymous
$104.40
Johanna Kurscheid
It is not the circumstances we find ourselves in that define us but how we choose to navigate those circumstances. Stay strong Emma. Medicine is advancing rapidly. X
$101.27
Anonymous
$104.40
Jill Geersen
Archie Rose from preschool thinks of you often and hopes that you get better. We hope this donation will help research and help you. Love from Archie
$1.52k
Geoff
$1.02k
Shannon Cotter
$52.20
Anonymous
$500
Rosie & Craig Morgan
Hi Grace We hope our contribution can help research find a breakthrough that will enable you to do things that other children can do. Xxx
$52.20
Anonymous
$52.20
Paul Shorten
$101.27
Clare Lewis
$101.27
John Dimitropoulos
My best wishes for Grace and family.
$208.80
Lisa Tsibulya
$52.20
Anonymous
$515
Sheryl & Ian Howell
$28.19
Anonymous
$52.20
Anonymous
$101.27
Anonymous
$101.27
Kris Urbaniak
Best of luck Emma !!!
$28.19
Anonymous
$101.27
Kamilla Urbaniak
Best of luck 😘
$20.88
Anonymous
$52.20
Tim Flaherty
$672.30
Jayne Wheen Corpus Christi School
With Love from Corpus Christi for Grace
$1.5k
Berry Actuarial Planning
All the best for a very worthy cause.
$50
Andrew Hanley
$52.20
Bernadette Mahoney
$208.80
Cheryl Doyle
You are beautiful.
$100
Family Group On Behalf Of Sue Mahony
You are in our thoughts and prayers
$52.20
Lynne Mathias
Thanks for giving us this opportunity to be a part of such a wonderful initiative to assist Grace.
$20.88
Anonymous
XOXO may your life get only better you beautiful soul!
$104.40
Anonymous
$5.51k
Westpac Fundraising At Work
$208.80
Anonymous
You are a hero Grace. I wish you all the best from the bottom of my heart.
$52.20
Suzanne Quan Chai
Sending you lots of love and strength Emma
$104.40
Andy Tsang
$52.20
Justin Hon
$52.20
Manuel Paredes
$104.40
Tiago Silva
You are both champions, may God bless you and the research team!
$104.40
Stuart Johnson
All the best
$52.20
Xavier Howell
Hi Grace! I miss you lots, keep being the amazing, joyful, strong and brave girl that you are. Lots of Love Xavier
$52.20
Philip Tsang
$104.40
Mandie Durack
Thank you for sharing your story. I hope this small donation contributes to you achieving your goal, so that more research can been done to help Grace.
$261
The Watts Family
Dear Emma Thank you for letting us be part of this journey. Sending you lots of love and strength. From William, Amaya, Fay & Jamie
$101.27
Karen Sercombe
We are here for you Grace! You are a champion.
$50
Matt Bown
$52.20
Soon Yuen
$104.40
Anonymous
$104.40
Ev Carroll
Em and Ad, you two are so strong!
$52.20
Sebastian Howell
Hi Gracie it’s Sebby here, I hope you and the family are going well. I wish you the best with your goal and I’ll always love you more and more xxoo Seb.
$52.20
Anonymous
$101.27
Megan, Dave And Jake Turner
$104.40
Anonymous
$52.20
Pam Farrar
It is my greatest pleasure to be able to donate to a very special cause.
$52.20
Anonymous
$100
Kari Schabel
$52.20
Tara Cetinski
$52.20
Carrie
Best of luck to your family and I really hope you achieve a better life for a gorgeous little girl.
$100
Stephen Shirley
Amazing indeed.
$52.20
Gareth
Thanks for sharing your story. A good reminder of what actually matters in life.
$104.40
Johmar Gazo
All the best for Grace, Adam and Emma.
$52.20
Pranila Sharma
All the very best.
$104.40
Marnie Owens
Donated. I wish you all the very best!
$104.40
Vijay Vijayaseelan
Wishing great success to Grace & the medical team.
$52.20
Max Bondorovsky
All the best for the fund raising Adam!
$111
Peshalta Gukhool
Sending love and light to you beautiful Grace :)
$52.20
Sinead White
Very best wishes to little Grace
$104.40
Anonymous
Stay strong, Adam and Emma.
$50
Ivan
$52.20
Katerina Dorofeyuk
$208.80
Mike Way
Best wishes for courageous Grace and for the research work
$101.27
Kate Gannon
I hope you can fund the position and wish you all the best, Kate
$27
Jeanine H
$104.40
Anne Garlick
For Grace, all the very best with the trial
$50
Shreya
All the best and I hope you get the support you need!
$31.32
Jane Rich
$52.20
Ben Clarke
$208.80
Dan Chesterman
Best of luck with the fundraising Adam and Emma. An amazing and important cause
$52.20
Taleen Shamlian
$50
Rob Mccabe
$20.88
Anonymous
$1.38k
Anonymous
Our pleasure to give.
$261
Anonymous
$28.19
Eve A
$1.02k
Pauline Maly
Beautiful Grace your family love you and want to see you run, God bless.
$52.20
Karen Wilson
We adore Gracie and this is so vital! Goodluck with the fundraising, we will be following your journey. Lots of love Karen, Tom, Harrison and Isla x
$104.40
Jan And Ian Allford
Sending hope and positive vibes with our donation 💗
$104.40
Anonymous
$208.80
Marea O’donnell
$104.40
Ali Horsley
$104.40
Jens Ostheeren
$52.20
Matt Ferguson
$100
Hilton Sack
$208.80
The Ernst Family
Lots of love, Kerryn, Chris, Ethan & Callum Ernst
$101.27
Nur Oyman
Sending the best karma ever to Maly Family’s way
$52.20
Colleen Barrie
$261
Elle
Lovely Emma We hope our little donation will help towards getting a cure to help you have a wonderful life. Wishing you and your family much strength and happiness, love 💕 Lauren and Elle
$52.20
Aska
Amazing Grace. You’ve taught me so much and will continue to do so. It is absolutely an honour to be able to work with you. I’m looking forward to having many more conversations we’re going to have.
$52.20
Eric Hui
$101.27
Penny Delmage
Amazing fundraising for a well deserved cause. You go Gracie ❤️
$1,000
Steve Soh
$52.20
Steve & Debbie Anderson
$28.19
Marcus Heah
$52.20
Garth Elliss
$104.40
Kevin & Akke Mclintock
$28.19
Anonymous
💗
$28.19
Anonymous
$52.20
Shari Jayalath
All the very best to achieve your goals Emma and Grace. I hope that it may result in some valuable and much needed research .
$104.40
Aysha Oconnor
I hope you this helps. Sending a huge hug your way.
$52.20
Julie Nash
Lots of love Gracie, the Nashes
$104.40
Ria Sharma
Wishing roaring success to Grace and the researchers!
$50
Robyn Isaacson
To a very special family, Just a little something towards your incredible journey of love, determination and hope. We pray that one day soon Amazing Grace will be running in to your arms. Love Robyn, Craig, Casey and Dean Isaacson
$28.19
Jordan Laime
Hi Emma, our daughter Jordan goes to Corpus Christi too and we’re supposed to bring some gold coins today but she lost her wallet again.😅 Praying for the best result for Grace!🙏❤️
$52.20
Zorawar Singh
$52.20
Anonymous
$52.20
Isabelle And Harper
$208.80
Mark & Kim
$5.22
Anonymous
$52.20
Samantha Zhu
Grace, you did an excellent job for doing your channel 7 news! And you're the best ever. I wish you could come to my house for a swimming playdate. Please check with your mum if she can go in with you in my spa.
$28.19
Rachel Morison
$104.40
Christine Hooper
You are my Amazing Gracie. I look forward to the day when you run and chase me on the oval. I am honoured to have you in my life and thank you for letting me be a part of yours. Xx
$20.88
Jackie Hewson
Stay strong Grace x
$28.19
Anonymous
$10.44
Anonymous
$104.40
The Devitt Family
This research is so important and Grace deserves every chance to achieve her wish.
$104.40
Jessica And Ryan Page
Sending lots of love to your family. Al
$52.20
Nicole Talbot
Your story hits home with us so much, we also have a rare gem with our little girl, they tell us only girl in the world with a deletion syndrome without a name with Global delay and hypotonia. We hope you get everything you need to allow your beautiful girl to thrive in life. All the very best
$28.19
Emily Thornton
Love to Grace and the family always xxx
$52.20
Martin Williams
$10.44
Anonymous
$101.27
Byrne Family
Wishing you a successful fundraising and pray for the research to have an excellent outcome for Grace and your family.
$28.19
Anonymous
I wish Grace & your family all the very best outcome. 🤗💜
$20
Anonymous
$52.20
Anonymous
$52.20
Anonymous
All things are difficult before they are easy. Please stay positive, patient and persistent. You are doing an amazing job. May God bless you and your family.
$28.19
Nadasdy Family
$52.20
Anonymous
$52.20
Liam Moffett
You are a superstar Grace 😊
$52.20
Anonymous
$50
Ben White
$50
Eliott Howes
Well done Grace!
$52.20
Anonymous
$52.20
Nathan Taggart
$31.32
Heidi Valuks
$52.20
Isabella And Harrison
$20.88
Anonymous
$515
Andrew Mccoy
Prayers for all that are challenged with this. Grace you are the light! Keep pushing through the barriers!
$28.19
Silvana Arena
You are amazing!
$156.60
Anonymous
$28.19
Anonymous
🌸
$27
Anonymous
God bless
$52.20
Anonymous
Go Grace!
$52.20
Anonymous
What a brave girl and wonderful family. Stay strong and keep smiling that beautiful smile.
$10.44
Terry Cislowski
look at her gut for bugs this is where you need to fix
$50
Anonymous
zam zam water
$20.88
Anonymous
Thoughts and best wishes to Grace and family. May she be able to get treated to help her live a long, happy and normal life.
$52.20
John Corgan
$50
Anonymous
Good luck
$52.20
Seeto Family
Wishing you all the very best Grace and family! We hope you are able to raise the funds that you need x
$52.20
Anonymous
$50
Anonymous
$52.20
Anonymous
$28.19
Brittany Bretherton
Best wishes for the fundraising and for the research!
$52.20
Kathy Curran
$27
Anonymous
$10.44
Daniel
Cure will come, life will be much better
$28.19
Susanna Quinn
Sending you every good wish Grace. Hoping this research will enable you to thrive and live the life you dream of and truly deserve sweetheart. Much love xx
$101.27
Anonymous
all the best
$30
Christine Knight
Trusting scientists can find a cure for your beautiful daughter Grace. Sending love and prayers
$28.19
Anonymous
$10.44
Anonymous
$50
Peter D'abreton
$52.20
Anonymous
$20.88
Anonymous
$20.88
Anonymous
$104.40
Anonymous
$52.20
Anonymous
$100
Anonymous
$20.88
Alisha Foster
Hi Grace, I have a daughter named Grace too who was born in November 2015. Her big brother's name is William (Will), can you believe that. Grace, we think you are amazing, I hope you reach your target amount. We are sending you a lot of love, hugs and sparkles xx
$28.19
Amber Standley
$28.19
Maureen Watts
Sending love and light to you all.
$200
Anonymous
$20
Loanna Gee
$20.88
J
Best of Luck
$52.20
Nick Richmond
You are inspiring and amazing.
$28.19
Carol Stoppa-blackwell
$52.20
Michelle Mangano
$20.88
Mike M
$28.19
Jennifer Jagoszewski
$28.19
Anonymous
$50
Anonymous
$10.44
David K
$10.44
Anonymous
$208.80
Kurt Ploszczyniec
Keep going, good luck.
$52.20
Adam Knowles
$52.20
Anonymous
$28.19
Anonymous
$50
Sophia Vermaas
Sending you so much love and strength to you all Emma and hoping you’ll reach your goal for your amazing Grace.
$50
Paul Yeardley
$10.44
Anonymous
$28.19
Melissa O'grady
Tell Grace from me that she is a beautiful girl who will walk one day. Technology these days are only going to get better. Hopefully a cure will come for Grace soon. xx
$50
Anonymous
$20.88
Nick D'cruz
Keep smiling mate. You inspire me.
$10.44
Anonymous
$52.20
Paige
$52.20
Anonymous
$101.27
Anonymous
Looks like you have been blessed with Grace (on multiple levels)! Praying for you and your family - for positivity, faith, strength, endurance, support, understanding, medical breakthroughs and most of all, love.
$1.02k
D Pas
Keep smiling and being happy whilst the scientists work hard!
$15.66
Cathryn Potter
Good luck Beautiful Grace! Sending love and strength to you & your family.
$52.20
Corey Parsons
$28.19
Anonymous
$10.44
Anonymous
$104.40
Joanne C
I read about Grace's story on news.com.au just now. Sending best wishes and support for Associate Professor Wendy Gold's research. xx
$28.19
Danny Neal
Scientists will find a way.
$104.40
Walter Reed
Keep smilin’ Gracie.
$52.20
Glenn Wilson
$52.20
Anonymous
$75.17
Anonymous
$52.20
Sherrie Blackman
Best wishes. xo
$5.22
Steven Bevan
$52.20
Anonymous
$28.19
Anonymous
$28.19
John Liarris
Be strong Emma may God bless you.
$52.20
Nicola Caldwell
$52.20
Brett Chalker
God bless you Grace.
$20.88
Anonymous
Good luck Grace
$28.19
Elina Woolley
$101.27
Anonymous
$52.20
Anonymous
$20.88
Chloe & Lily Shackles
$10.44
Anonymous
$49.07
Graeme B.
$28.19
Anonymous
$28.19
Anonymous
Sending our love to your family xxx
$50
Gowri Suppiah
$20.88
Anonymous
$52.20
Anonymous
$28.19
Mandy Callow
$28.19
Jake Enkera
$52.20
Marina Pinter
All the best, stay positive and strong!
$28.19
Rachel
I hope you reach your goal xx
$52.20
Anonymous
$52.20
Kevin Scrimshaw
$20.88
Anonymous
$50
Gillian Smith-wright
$52.20
Lisha Chen
All the best
$52.20
Melissa Stankard
$27
Anonymous
$20.88
Daniele Frazer
$20.88
Kay France
$50
Angie Hempel
Thinking of you and hoping that this fund raising can help your dream for a cure.
$52.20
Anonymous
To Grace's Parents, We hope Grace thrives and improves her quality of life as medical research and advancements in therapy improve. Just a thought, you may want to speak to a specialist in the field of neurological disorders in Sydney, NSW. Try reaching out to Dr Carlo Rinaudo. Details are enclosed below. BrainHub DR CARLO RINAUDO W: https://brainhub.com.au/about-us/ PH: 1300 770 197 Wishing Grace all the best she wishes in life. Thanks, J.
$20.88
Anonymous
$52.20
Fletcher Roscrow
$28.19
Andrew Mcconchie
$10.44
Jayson Mills
Wish I could afford to donate more. Hope this small contribution helps
$28.19
Todd Hull
$52.20
Martina Parker
I pray you get the research you need for Grace.
$101.27
Anonymous
$52.20
D Spa
bless
$50
Tania Lock
Good luck Grace
$31.32
Bhavana K
$20
Elnaz
Beautiful girl. Small contribution but I hope it helps in creating the most wonderful life for you. 💕 Keep shining. ✨
$27
Pam Moore
All the best for you and your amazing Grace. Life is full of unexpected surprises, may there be a wonderful one in yours.
$31.32
Anonymous
I will hope every single day for you!
$20.88
Anonymous
$28.19
Cameron W
You've got this Grace!
$28.19
Anonymous
$27
Anonymous
$28.19
Michele Collins
$104.40
Anonymous
$28.19
Anonymous
$104.40
Anonymous
Praying for your beautiful daughter and believing for a cure!
$52.20
Anonymous
$52.20
Anonymous
$40
Jasper Downes
All the best Jasper,Emma and Roland
$52.20
Maureen Fenby
God bless
$52.20
Anonymous
Hi Emma amazing news for Grace , we are here thinking of her and all the best for her future . Sam miss her . Love the Petropoulos family .
$208.80
Michael G
Love , hope and strength from Michael, Lauren and Joe
$104.40
Anonymous
$104.40
Anonymous
$208.80
Michele
Sending big love to you Grace and your amazing family. Love Michele, Kevin and kids!
$1.52k
Anonymous
Praying for the Malys and Corgans and all others navigating ADCY5.
$101.27
Gemma Archer
I hope this research will make a difference for the amazing and courageous Grace! Thank you for letting us be part of this journey with you.
$50
Anonymous
$100
Anonymous
Praying for Grace to achieve her wish 🙏🏻🥹 Stay strong darling ❤️🩹🙏🏻🌺
$208.80
Anonymous
Grace, you are an inspiration and we wish you a bright future and your family strength and happiness.
$1.02k
Ben, Em, Hugo, Oscar And Madeline
Sending our love and wishing you the best of luck with the appeal Emma, Gracie and family. Here’s hoping you reach your goal and can start the research you need.
$27
Anonymous
$31.32
Andrea Cortés
It’s a very small contribution but filled with hopes and prayers to you and your brave little girl!
$104.40
Ron Cross
$52.20
Kenny & Rachel Stolberg
$28.19
Alexis Safo-agyeman
$20.88
Sophia
Grace inspires everyone she comes into contact with! Fingers crossed the research continues and brings fresh hope to everyone! 🤗
$52.20
Liz Williams
Go Gracie!!
$52.20
Davina
Such an inspiring family. Keep up the great work!
$208.80
Ada Lift Rentals Of America
You got this Grace!
$52.20
Jade Tsen
$104.40
Mary Glasbey
$52.20
Daniela
$515
Ranco Response
$52.20
Divya Pande
Wish you all the best!
$52.20
Gail Schwartz
$101.27
Steve Mann
$150
Anonymous
Will be praying for dear Emma
$101.27
Anonymous
Love to Emma and the Corgan's.
$10.44
Lisa Mudge
Good luck Grace! <3
$208.80
Ernest Raetz
Good luck with the appeal Emma and Grace, and my best wishes to you all. Ernest 🤗!
$52.20
Anonymous
Good luck dear little Grace
$52.20
Lisa Ashton
$101.27
Samantha Bayliss
Hi Emma! I wish you all the best!
$104.40
Brett Jollie
Great cause - hope to see Grace running one day…
$208.80
Pablo Pineda
$101.27
Karl Mistry
$515
Damien Faulkner
$1.02k
Anonymous
Gracie will run, Emma!
$515
Tom Manevski
i want to help you out to grt your little girl the help that she needs
$52.20
Rachel Connors
Good luck Emma - praying answers will come and you will benefit.
$101.27
Anonymous
$104.40
Kellaigh
Looking forward to the research being very informative and helpful for Grace 💕
$200
Jones Family
Go Gracie! Sending big wishes to you All, as you take another step closer to reach your hopes & dreams xx Dylan & Family.
$104.40
Glasser Family
$28.19
Isaac Douek
I hope a breakthrough in research happens soon
$52.20
Carly & Tom Deighton
Sending love to your family Emma From carly and Tom deighton. Xx
$28.19
Kerrie White
$100
Sophie Cook
$1.02k
Anonymous
Our hearts are hoping that this research will be a game changer for Grace. Lots of love T,T,R & M xxx
$515
Sandra And Glenn
$52.20
The Teongs
Wishing you so much success with this fundraising campaign, breakthroughs in the lab and a treatment for gorgeous Grace ❤️ lots of love ❤️
$156.60
Anonymous
$2.52k
Cran And Sally Mallin
Much Love
$156.60
Christine Chau
Your motherly devotion and love to Gracie is extraordinary. You are a legend, Emma.
$1,000
Anonymous
Dear Emma, Best wishes, we are very hopeful Grace will achieve her biggest wish of being able to run. Sending lots of love and blessings to you and your family.
$140
Anonymous
$101.27
Anonymous
$1.02k
John O'donnell
$500
Best Friend Eliana
What a great cause! Hope Eliana and Grace can run together soon 💜
$500
Anonymous
$52.20
Anna Higgins
$28.19
Anonymous
$52.20
Anonymous
$104.40
Melissa, Ben, Noah & Toby Maly
We love you all - wish we could do more ❤
$41.76
Anonymous
$52.20
Pamela Rothwell
I hope to make a difference with this small gesture.
$52.20
Caitlin Peake
$261
J&j
You go girl….. we all convinced there is a much stronger future for you
$104.40
Peta
God Bles you all
$261
Daniel
$52.20
Mandy & Geoff Daniel
I have a son with a very rare genetic disorder Trisomy 9p and we can relate to the need of more studies on rare genetic disorders. Good luck on the research for Emma.
$50
Sandra Carvalho
Big hug for Emma!!
$208.80
Anonymous
$1.5k
Anne Maly
To Gracie may you be able to walk some day soon. Love Nan and Pop.
$52.20
Myra Godfrey
$28.19
Sonia G
Wishing you all the best for Grace! May this be the beginning of an exciting chapter
$50
Yvonne & Collin Pardy
$5.22
Anonymous
$156.60
Lou And Dan Fitzpatrick
$52.20
Rita Sayad
$104.40
Bill Krushka
$200
Pole Family
$104.40
Julie Camilleri
$261
Peterson Haines
Best wishes for this inspirational little girl, and her family
$52.20
Robyn Rutherford
All the best darling Emma. You and your family are amazing!
$52.20
Anonymous
$50
Alicia Szoboszlay
Good luck, Grace! I hope you have the treatment you need as soon as possible and achieve your goal of running xxx The Szoboszlay family
$52.20
Phillip James Dooley
$5k
Bruce Turner
Wynstan wishes you ever success
$27
Paul
Keep at it Grace and good luck !!
$52.20
Leanne
Your family is an inspiration. We pray for Grace and hope you reach your goals!
$1,000
Anonymous
$100
Persis Kalapesi
$28.19
Anonymous
Hang in there kid
$101.27
Kylie And Eamonn Brennan
We hope you soon have a full time researcher for this very special project - much love
$101.27
Anonymous
$101.27
Kerry Crowther
Feeling for you. Best wishes with the research campaign.
$101.27
Cathy Baker
Wishing your family success and happiness
$287.10
Butcher Family (friend And Classmate Daniel)
$52.20
Mel Steward
I hope this helps
$52.20
Anonymous
Wishing Grace all the best and hope this helps her run.
$200
Anonymous
$20.88
Liz Bednarek
$28.19
Westside Aquarium
We are praying for you
$31.32
Rhonda Hopkins
Hope you can reach your target
$200
Dianne Mickleborough
$208.80
Toni Sherwood
$1.02k
All Our Love Miche, Tim, Xav And Seb
Dear Grace, Emma, Adam, Will and Ollie. Your drive and courage continues to inspire!
$101.27
Sunil Patel
$104.40
Greg Glass
$200
Rozelle Dsouza
Good luck in getting the research funding - and kudos to you for raising the funds for Grace and other children like her!
$52.20
Ruwan Wijetunga
All the best Grace!! Keep your head up and your spirits high.
$52.20
Anne And Mark Elliott
What a beautiful determined young girl . A true inspiration 💕
$104.40
Stephen Leo
$1,000
Paul And Janelle
Love your smile Grace and of course wishing you the best
$100
Chandler Family
$97
Craig Neville
$515
The Whites
Here's to the amazing Gracie, Emma and family and to researching for a cause/cure...love Lauren, Greg, Nathan & Erin White
$104.40
Peter Goggins
$515
Anonymous
Hopefully, one more brick in the research wall!
$52.20
Rajni Luthra
$1.02k
Gran, Molly Howell
$500
Anonymous
What a great cause raising awareness and much needed research into ADCY5 for treatments to Improve the lives of those affected .
