Teddy's CTNNB1 Gene Therapy Fundraiser

By Lucy Mort

Hello, it's me again!

You probably recognise my cute face by now - it's me, Teddy, your friendly 2023 Jeans for Genes ambassador and CTNNB1 legend. 

My family and I and fundraising again but this time we have a very specific goal in mind...

The amazing scientists at Children's Medical Research Institute have developed a potential gene therapy treatment for CTNNB1 syndrome and now we need to test its safety and efficacy in a trial. The money we  raise through this page will contribute to further research on this AAV9 gene-therapy and other potential treatments for CTNNB1 Syndrome. 

Thank you for your ongoing support. 

You can learn more about Teddy here https://fundraise.jeansforgenes.org.au/teddy

My Updates

Benefit for Teddy & Friends - Fundraiser for CTNNB1 Research

Tuesday 13th May
We hope you can join us!
https://events.humanitix.com/benefit-for-teddy-and-friends

TRAIN THE TRAINER!!

Monday 23rd Sep
Hi All,
Our generous friends at Vision Personal Training Bella Vista are hosting a 'Train the Trainer' event this Saturday Morning, 28th September 2024.

If you'd like to donate and delegate some exercises you can do so by leaving a message with your donation stating the exercises you would like the PTs to do! 

Exercises to pick from:
$1 per star jump
$1 per sit up
$3 per push up
$5 per burpee
$20 per minute of planking

The bigger the better - don't worry, they can handle it!

Thank you to my Sponsors

$106.12

Raju Kotecha

Proud of you Lucy. Keep up the good work..

$211

William Anson

Wishing you all the best with reaching your goal and for Teddy to get what he needs!!

$22.58

Brian Richards

$33.15

Leslee Hughes

$29.90

Jeff Powell

$20

Michael Radburn

$2.02k

Christine Cook

$29.90

Angela Mihok

Teddy's smile warms my heart so much!

$1.02k

Busy Bee Tax Accountants Pty Ltd

Dear Lucy You must be an angel to have a baby like Teddy, God has put so much faith in you and trust that you can take good care of him. You are an exceptional mum coz I can only see happiness and grateful in your eyes. Teddy is so lucky to have a mum like you and I wish all your family are well and healthy! Keep the faith and never loose it! We are always here to support you whenever needed! Regards Ivy Ruan

$33.15

Karen Igoe

$50

Sue Projceski

Best of Luck with the fund raiser and Teddy (From one of Jacq’s friends)

$106.12

Jim Rainey

$103.15

Dipak Patel

$158.25

Wendy

$211

Mario Russo

$100

Jennifer Lawry

Very best wishes to you all

$97

Caitlib Dunsford

$309.30

D R

$315

R A

God bless

$52.92

Jackie Fenech

Inspiring family, hope all goes well.

$10

Anonymous

$20

Dana Elliott

Awesome work, Lucy! $20 for one minute of planking for our all-star Teddy!

$665

Vision Personal Training Bella Vista

$104.40

Angela Golledge

$104.40

Tall Order Electrical Pty Limited

Thanks to Vision Personal training for hosting an amazing fun raisier

$20

Sandy.picman@pmda.com.au

$104.40

Sonia Mastoras

$50

Zahid & Farzana

Good luck! Come back stronger.

$52.20

Tejasvi Shah

$52.20

Melina Yadkarian

Sa...

$261

Rosemary Tedesco

Vision Train the trainer - Sa

$52.20

Sandy

Richard - 50 reps squats 50 kg

$50

Mark Pace

Best wishes x

$52.20

Samantha Stevens

Train the trainer

$50

Britney Treloar

Train the trainer Vision

$20.88

Raja Krishnan

Vision Train the trainer

$156.60

Tiz Porreca

Good luck and wishing you love … I’m part of the Vision PT team in Bella vista

$52.20

Sanchita Desai

$52.20

Monica Malik

$130.50

Sri And Ban

All the best.

$62.64

David Mort

20 push ups please!

$50

Ann Walsh

$52.20

Tiff C

Go Teddy!!! Miss you guys Pete and Lucy! What a great cause.

$156.60

Nikki Mahajan

$104.40

Lucy Mort